The story revolves around Lukas Caldwell, a 19-year-old Nebraska native, who was diagnosed with Parry-Romberg syndrome (PRS) at the age of seven. PRS is a rare condition that causes the soft tissues in the face to slowly waste away. Lukas experienced facial pain, cramps, poor vision, and migraines, on top of being ridiculed by his classmates who called him 'half face'.
Lukas underwent four surgeries to repair the damage to his face and has shared his journey with his three million Tik Tok followers, spreading awareness of rare diseases and the importance of self-acceptance. Lukas endured years of medical treatments, surgeries, and relentless teasing from classmates and even adults. However, despite the challenges he faced, Lukas remained resilient and tried to stay positive. He struggled with severe anxiety and low self-esteem due to his condition, but he has outgrown these tendencies to some degree.
Lukas's twin brother, Ben, served as one of his strongest supporters, and Lukas found comfort in his brother's unaffected face, as it served as a reminder of what he could have looked like if he did not have PRS. The cause of PRS remains unknown, and while it may have some basis in genetics, Lukas's case suggests that genetics may not be the strongest determining factor. Lukas's story sheds light on the challenges faced by those with rare diseases and the importance of self-acceptance in overcoming adversity.