Bella Macey, a 10-year-old girl from Melbourne, has been diagnosed with complex regional pain syndrome (CRPS), one of the most rare and painful diseases in the world. It all started when Bella developed a blister on her foot during a family holiday in Fiji. The blister soon turned into a painful infection, causing her entire leg to hurt. After returning home and seeking medical help, Bella was diagnosed with CRPS, a rare neurological disorder that causes extreme discomfort and loss of movement in the affected limb.
Unfortunately, there is no effective treatment available for CRPS in Australia, so Bella's parents, Chris and Emma, have turned to seek treatment options overseas. Through extensive research, they have found the Spero Clinic in the US, which specializes in CRPS. To raise funds for Bella's treatment and medical expenses, Emma has set up a GoFundMe page. Bella's condition has left her primarily bedridden and she has lost movement in her leg. The pain is so severe that even a simple touch can be agonizing due to hypersensitivity. This has caused immense stress and pressure on the family.
Despite being on strong medication, Bella's pain has not been alleviated. Emma emphasizes the importance of every donation, no matter how small, in helping Bella on her journey towards recovery. The funds raised will not only relieve the financial burden on the family but also restore hope and strength to Bella. The ultimate goal is to see Bella smile, walk, play, attend school, and thrive once again. CRPS is a condition that causes extreme and unrelenting pain.
It typically affects one arm or leg following an earlier injury or nerve damage. The exact cause of CRPS is unclear, but it is believed to be related to the nerves in the affected area becoming more sensitive, altering the pain pathways between the limb and the brain. Treatment options for CRPS focus on pain relief and maintaining movement through rehabilitation therapy. Bella's story highlights the struggles faced by those with rare and painful diseases. Through the support of generous donors, Bella's family hopes to provide her with the specialized treatment she needs to overcome CRPS and lead a brighter future.